“Shouting ‘self-care’ at people who actually need ‘community care’ is how we fail people.” — Nakita Valerio
Several of my readers and friends have been encouraging me to take a break from Medical Motherhood’s weekly schedule and this week I’m going to take their advice. Between online school starting for the twins, a surge in freelance assignments (more on these exciting partnerships later), and many COVID-19-related absences of my son’s in-home caregivers, I have been burning the candle at both ends for most of the last month.
If you are experiencing burnout (see signs and symptoms here), there may not be a lot you can do to take a break as a parent. I get it. But I would encourage you to do what you can, so I will too.
I’ll be back next Sunday. I have a lot of great stories in the works! Until then, feel free to browse the archive. There are five months worth of stories; some you may have missed. Let’s call this a catch-up week for both of us.
Medical Motherhood’s news roundup
With $4 million in funding from the National Institute of Health, the Del Monte Institute for Neuroscience at University of Rochester is conducting a two year study with the Mary Cariola Center to see how COVID and the COVID vaccine affects this vulnerable population.
According to the National Institute of Health, children with disabilities are four times more likely to get COVID and seven to eight times more likely to succumb to the virus.
• From Oregon Public Broadcasting: “Oregon judge orders Hood River County School District to pay for former student’s lost year of schooling
Some of those things Josh didn’t consistently get in kindergarten — a full school day, dedicated one-on-one staff, and inclusion with his peers — are some of the same things students with disabilities may regularly miss out on in schools around the country, especially during the COVID-19 pandemic.
Earlier this month, special education advocates and the Oregon Department of Education reached an interim agreement in a class action lawsuit related to shortened school days for students with disabilities. An expert is set to review state records and data on where and why students do not attend a full day of school, and whether shortened school days violate IDEA.
• From Stolen Education, a documentary available through streaming services. (My son asked me to watch it and I thought it was interesting to hear from people looking back on an injustice that they didn’t understand as children. I saw parallels in the segregation my children have experienced due to their disabilities. The documentary centers on the court challenge to a 1950s Texas practice of forcing Mexican-American students to take three years of first grade, regardless of their proficiency in English.)
“We didn’t think anything about it,” says one of the white classmates in the film. “You can look back and see a lot of things in hindsight that you couldn’t see at the time.”
Medical Motherhood is a weekly newsletter for people raising disabled children, and others who care about disabled kids.
Visit the Medical Motherhood merchandise store.