Every parent knows the feeling of picking up the slack when systems fail, but for parents of disabled children, this isn’t an occasional inconvenience — it’s a full-time, unpaid job. When insurance companies fail to communicate, we’re expected to chase down approvals. When schools are short-staffed, we become the one-on-one aides. When hospitals are ove…
The Buck Stops Here
Plus: Oregon parents push to be paid caregivers; Kansan NGO stops work for disabled children after USAID implosion; OMB memo still reeking havoc on disability orgs despite reversal




