The Fight to Stay Home

A continuing legal challenge to disability rights headlines a week of rising need, long waitlists, and family burnout while glimmers of hope shine in…

Apr 5 • Shasta Kearns Moore

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March 2026

Hello, from Seattle!

Plus: Idaho family caregiver bill fails to advance; New AARP report shows $1 trillion in unpaid labor; Nebraska might end retroactive Medicaid…

Mar 29 • Shasta Kearns Moore

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Cuts and Consequences: This Week Feels Different

Nine stories shaping life for disabled children and families: From the Medicaid fraud debate to budget cuts and access barriers worldwide

Mar 22 • Shasta Kearns Moore

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The Medicaid 'Fraud' Witch Hunt Begins

Plus: Autism panel canceled as families wait for solutions; Idaho struggles to fund disabled children's care; Lawmakers revive attempt to boost…

Mar 15

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Trying to Look Like We Don't Need Help to Get Help

Plus: Idaho debates restoring paid parent caregivers, a New Jersey ombudsman calls out government indifference, and England proposes major changes to…

Mar 8 • Shasta Kearns Moore and Lenore Eklund

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Fact Check: DME halted??

Plus: Dutch researchers find "moral energy problem" among medical parents; Washington may cut early childhood intervention; and an NYC dance program…

Mar 1 • Shasta Kearns Moore

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February 2026

Medical Mom Wins Gold at the Olympics

Plus: Nebraska state senator sounds the alarm after disabled son's Medicaid eligibility error; Survey finds more than a third of medical parents in…

Feb 22

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Matchmaker, Matchmaker, Send Me a Caregiver...

Plus: Kansas mulls quarterly Medicaid redeterminations; Canadian researchers warn of cliff for care of complex disabilities in adulthood; Washington…

Feb 15

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Extreme Caregiving™️ and Everything Else That Happened This Quarter

As we enter the last quarter of Year 4 for Medical Motherhood: What has changed?

Feb 10

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If We're Not Funding What Children Need to Stay Alive, What are We Even Doing?

Medicaid DD services could be cut in Oregon and Idaho. Plus: Australia mom speaks out after murder-suicide of autism family and Congress passes budget…

Feb 8 • Shasta Kearns Moore

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Disabled Man Dies After ICE Detains His Primary Caregiver

Plus: Autistic children in Minneapolis are especially vulnerable during the crackdown; Florida's waitlist for Medicaid services is years long, yet they…

Feb 1 • Shasta Kearns Moore

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January 2026

What Happens After Families Speak Up

From a viral school video in Wisconsin to Medicaid caps and guardianship reform, this week’s stories show where parents are fighting back against access…

Jan 25 • Shasta Kearns Moore

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